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Sorry, but this a very limited description of the disease. Alzheimer's, like all dementias, is a disease of the brain, not "just memory". It comes with a whole suite of symptoms and difficulties that are experienced directly by the patient, including depression, irritability, aphasias, and often physical limitations in advanced cases.

Long-term memory loss dominates public perception of the disease, but as anyone who works with dementia can tell you, most of the time it is as distressing for the patient as it is for the family.



Dementia is a part of my condition (which seems to be idiopathic, presenting symptoms of both Parkinson's and Huntington's). The motor difficulties and aphasic episodes are the things that I can't explain away, even though the explanations for other things are often quite convoluted. There was a period of some weeks a couple of years ago now when I amassed what must have been the largest privately-held collection of tomato ketchup in Canada, apparently by going shopping for food I needed and, having no idea why I was in a grocery store (or, for that matter, which store I was in) deciding that I was probably nearly out of ketchup anyway, and that I could get out of the store without embarrassment if I bought a bottle. I lost nearly thirty pounds that month, and wound up in the hospital twice due to extreme dehydration. Apparently I was not particularly nice to the people who were trying to help me, since I didn't need their damned help anyway, and they were trying to poison me. Things are considerably better now with medication, but there are still times when I find myself completely lost in what should be familiar territory. And I'm no longer really attached to anybody; it's like that part of me is missing now, and I can't sustain anything like caring. I don't know how much of the depression and irritation is part of the pathology and how much is just frustration and fear (terror, really) that never really goes away. Sometimes I think that if there is ever a root cause found and a cure effected, it would take me many years before I would trust normal life again.




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