Oh. That’s interesting. Thank you. Yeah, my BP has been abnormally low since this thing and I am often finding I have a ridiculously high and weak pulse from nothing - usually when I stand up from tying my shoes, or picking up my daughter - I often have to grab something and breathe for a few moments while I break out in a cold sweat. And the whole “heavy lower legs” thing rings very true too, along with the constipation - fun side effect is I have developed horrendous haemorrhoids.
I’ve got into the habit of changing posture slowly, as it makes it far less likely I’ll keel over.
It’s pretty distressing as at the start of this year I was the kind of guy who would scurry up and down a mountain to watch the sunrise before breakfast, and now I’m struggling to walk to the car from the house.
And I can’t fucking sleep - again, it’s my heart rate - lying flat seems to send it soaring, and I have to wedge myself at a very specific half-reclined angle that invariably results in a sore neck for it to not.
You're welcome, I'm sorry for what you're going through. You probably will eventually need to find a specialist who works with patients with dysautonomia or Long Covid but there's plenty of stuff you can do on your own or with a friendly PCP (or maybe more realistically, with a PCP who you can persuade to order the appropriate testing).
This does all sound like POTS and orthostatic hypotension though, maybe with other issues mixed in, but that's a good place to start.
Hopefully my other comment in this thread is helpful!
I’ve got into the habit of changing posture slowly, as it makes it far less likely I’ll keel over.
It’s pretty distressing as at the start of this year I was the kind of guy who would scurry up and down a mountain to watch the sunrise before breakfast, and now I’m struggling to walk to the car from the house.
And I can’t fucking sleep - again, it’s my heart rate - lying flat seems to send it soaring, and I have to wedge myself at a very specific half-reclined angle that invariably results in a sore neck for it to not.
Thank you. I’ll look into this.