The problem is as a taxplayer I have a cost/benefit that is different depending on if I know someone with the condition in question. Have same cancer as my mom: throw a ton of money at it. Have some other cancer not in my family: waste of money, people die all the time. Of course that is a strawman, nobody is that bad, but the point is eventually we have to decide how much to put into trying to find a cure. However the point still stands, whoever is going to pay for this needs to decide how much is worth spending and that will be argued.